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Showing posts with label chemo chemotherapy transfusion cancer MDS motor home brain tumor head cheese hospice. Show all posts
Showing posts with label chemo chemotherapy transfusion cancer MDS motor home brain tumor head cheese hospice. Show all posts

Saturday, May 14, 2022

Update Then Move On

A few years ago, life interrupted  so I'll try to catch you up before I  move on. 

We left the Yellowstone area in the fall of 2017 having spent an amazing summer in the area (more on that later). We traveled back to TX for the winter as usual, but this time was different. I noticed a change in Shel's health and we needed to get back to TX as soon as possible. With extreme weight loss, malaise, loss of strength and abilities, I knew something was terribly wrong. We settled near San Antonio to be closer to medical resources and family. A year of medical appointments, tests and hospitalizations finally culminated in quad bypass surgery in February 2019. Even though the surgery was successful, Shel still faced other serious health issues.

While Shel was still hospitalized, I was diagnosed with a brain tumor



I was so consumed with Shel's recovery that I ignored my own symptoms. I eventually had an MRI and was immediately admitted for brain surgery. We finally reunited at a rehab facility and for the next month we underwent therapy to regain our strength and agility. Our family and my daughters managed our affairs, and made ready an apartment for us when we were released. 

Rehab
 
We eventually moved in and life was good living on the 1st floor with a view of the community pool. I take advantage of the pool as often as I can and use the fitness center when I feel up to it.


After we moved into the apartment, I gradually became the sole caregiver, taking on most of the day-to-day tasks as Shel continued to deteriorate and no longer had the will or ability to carry on. We always promised our commitment to each other that included wiping each other's ass if it came to that, which it did. It was always a 2-way street for us and I knew that had our roles been reversed, I knew I would receive the same devotion, no question.

I enjoyed cooking for us, I never tired of making appealing and favorite recipes. Shel absolutely loved my stuffed peppers.

I even made things I would never eat. Shel and my mother shared a love of pigs feet, souse, scrapple, hog-maw, liver, and  

HEAD CHEESE


Unfortunately, they never met.

Life became a routine of chemo, blood tests, infusions, transfusions, visiting nurses. Last weight was 150 lbs, 6'4" tall. Although Visiting Nurses came every week, I began considering fulltime nursing care. 

Before that could happen, Shel fell in the middle of the night, hitting the edge of the bathtub resulting in several brain hemorrhages. I had a conversation 4 days later with one of the team of doctors who asked me to authorize or not heroic efforts if necessary. At that point I realized I had to face the gravity of the situation and that recovery was not possible. No prayers or divine intervention could  change the course of life or death.  Shel passed away 5 days later in Intensive Care just after being admitted to Hospice just hours earlier.


I am grateful that we had almost 25 years together. Our experiences living in Pennsylvania, NYC, small town upstate, traveling fulltime for 5 years then settling in TX was a life together well spent.

Our life together was complex, more than most. People who know us may say I could have done things differently. I chose not to.  Because, love.